Category: Daily Life & Caregiving

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Daily Life & Caregiving

The Signals That Matter: Body Language and Tone in Dementia Care

I remember being in a memory care community during a time of staffing challenges. We were all in the large dining room, residents eating dinner, when two staff members started discussing their frustration with the schedule and a coworker. As the conversation went on, their tone grew louder and more intense.

I felt a tap on my arm.

“Am I in trouble?” a resident asked, her eyes wide with worry. “Why is everyone so angry?”

Her concern was real, raw, and visible. I quickly asked the staff to take their conversation elsewhere. One of them looked puzzled. “Sure, but she has dementia. It’s not like she can understand what we’re saying.”

But in so many ways, she did understand.

When we think about communication, we often focus on words – the questions we ask, the stories we tell, the instructions we give. But for someone living with dementia, communication goes far beyond language. As dementia progresses, the ability to understand words can become more challenging, and our loved ones increasingly rely on nonverbal cues – the subtle signals we send through body language, tone of voice, and facial expression.

Sometimes the assumption is made that because the person living with dementia has short-term memory loss or is experiencing confusion, they don’t notice our stress, impatience, weariness, or frustration. In reality, the opposite is often true – they may be even more attuned to those emotions than we realize.

The Power of Nonverbal Communication

Even when words fail, people with dementia are often keenly aware of how we make them feel. They pick up on:

  • Tone of voice: A gentle, calm tone can reassure and soothe, while a rushed or frustrated tone can cause anxiety or confusion.
  • Facial expressions: A warm smile can invite connection, while a frown or tense expression may create tension, even if our words are kind.
  • Body language: Leaning in to show attention, maintaining an open posture, or offering a supportive touch can communicate care far more effectively than words alone.

Our body speaks a language that resonates at a deep, almost instinctual level. People living with dementia subconsciously look for these cues to understand how safe, supported, and valued they are.

Why Words Alone Aren’t Enough

Imagine trying to follow a conversation while someone speaks in a calm, warm voice versus a hurried, distracted one. Even if the words are the same, the experience feels completely different. For someone with dementia, how we say something often matters far more than what we say. Words can lose meaning, but the emotions and actions we convey remain powerful guides for understanding.

Remember: We Are the Ones Who Need to Adapt

Sometimes, communicating effectively with someone living with dementia means adjusting ourselves. We may need to pause for patience, slow down, soften our tone, or use gestures to clarify what we mean. Although we have care tasks that are important, the ultimate goal in every interaction is that the individual feels safe, accepted, loved, and valued.

Practical Tips for Communicating Beyond Words

Here are strategies to help make every interaction more positive and meaningful:

  1. Smile: It may seem simple, but a genuine smile conveys warmth, kindness, and reassurance.
  2. Slow down: Speak at a gentle pace and pause to allow time for comprehension.
  3. Maintain eye contact: It shows attention, interest, and respect.
  4. Be mindful of your tone: Calm, reassuring voices help reduce anxiety.
  5. Use supportive gestures: Open hands, a light touch on the hand, a hug when it is welcomed, or leaning slightly forward can communicate presence and empathy.
  6. Mirror emotions carefully: A gentle nod of agreement or soft smile can reinforce comfort and connection.

The Heart of Connection

Ultimately, communicating with someone living with dementia isn’t just about transferring information – it’s about conveying love, patience, and understanding. When we pay attention to our own nonverbal cues and adapt to meet their needs, we can reduce frustration, enhance trust, and create moments of genuine connection.

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Daily Life & Caregiving

“Let Me Help!” — The Power of Purposeful Activity in Dementia Care

When someone you love is living with dementia, it’s easy to feel like your job is to take everything off their plate. Cook the meals. Fold the laundry. Water the plants. Sweep the porch. You do it because you care, because it’s faster, because you’re trying to be kind.

But here’s the beautiful truth: your loved one still wants to help. In fact, they need to.

People with dementia may struggle with memory or decision-making, but their desire to be useful — to contribute, to care for their surroundings, to feel a sense of purpose — remains strong. It’s part of what makes us human. And giving someone the opportunity to be productive in a way that’s familiar to them isn’t just “nice.” It’s essential.

A Moment I’ll Never Forget

I remember visiting a memory care community one afternoon and noticing a woman sitting quietly in the corner. Her face was blank, her body still. She seemed completely disengaged—like the world was happening around her, not with her. Staff gently offered her snacks, conversation, even music, but nothing seemed to connect.

Then something simple happened: we handed her a bowl and asked, “Would you mind helping us stir this?”

At first, nothing. Then, slowly, she reached for the spoon. Her hand started to move in a gentle circle. And then — she stood up. She began stirring with purpose. Her expression changed. There was life in her eyes. She even began humming softly as if her body and spirit suddenly remembered something joyful.

It was incredible. In just a few moments, she had gone from withdrawn to engaged, simply because someone saw her not as a person to be cared for, but a person who could still contribute.

That moment sticks with me because it’s a perfect example of why purposeful activity matters. Sometimes all it takes is the right invitation—and a little trust that there’s still so much more within.


Why Productivity Matters More Than Perfection

Research (and lived experience!) tells us that familiar, purposeful activity releases feel-good brain chemicals like dopamine and serotonin. Think of these like a warm cup of tea for the nervous system—calming, centering, and uplifting.

When someone with dementia gets to do something they’ve always done — like watering the houseplants they used to tend so lovingly, or folding towels the way they always did after laundry day — it creates a spark of recognition. Their brain remembers the rhythm of the task. Their body remembers how it feels. They feel successful, and you get to witness a beautiful moment of “Hey, I’ve got this.”

Even simple routines like sweeping the porch, setting the table, or organizing the junk drawer can ignite that powerful sense of I belong and I matter.


The Memory That Stays: The Strength of Muscle Memory

One of the most surprising and hopeful things about dementia is this: short-term memory is often the first to go, but long-term memory — especially task-related memory — can stick around far longer.

That means even if your loved one can’t remember what they had for breakfast or what day it is, they might still remember exactly how to make the bed, or wash dishes, or iron a shirt. It’s called procedural memory, and it lives deep in the brain’s wiring.

This kind of memory is like riding a bike — once you learn it, your body tends to hold onto it, even when other types of memory fade. That’s why someone might light up and start humming while sweeping the floor or tying an apron — those motions and patterns are familiar, comforting, and accessible.

So if you’re ever wondering, “Would they even remember how to do this?” — give it a try. Start the motion yourself. Hand them the item. Guide their hand with your hand. Use visual or tactile cues. You might be amazed at how their hands remember what their mind forgot.


How to Incorporate Purpose

  • Make it familiar. The magic happens when the activity feels like them. Was Dad a mechanic? Let him sort and shine a box of old tools. Did Mom run a tight household? Ask her to show you how she used to fold towels. Was your aunt a teacher? Let her review coloring pages or lead a story time. These aren’t chores — they’re ways to connect with who they’ve always been.
  • Keep it simple. Skip anything too complex or multi-step. One-task-at-a-time is best. If it feels confusing, break it down or model it.
  • Stay safe. No sharp tools, hot stoves, or stairs if mobility’s a concern.
  • Don’t correct. If the towels are folded “wrong,” let it go. This isn’t about perfect linens — it’s about an affirming moment.

Adapting Activities: It’s Not About What They Can’t Do

One of the biggest mindset shifts in dementia care is moving from “they can’t do that because they have dementia” to “how can we adapt this so they still can?” Almost every activity can be modified to match a person’s current abilities—cognitively, physically, and emotionally. The goal isn’t perfection—it’s participation, connection, and confidence.

Start by asking:

  • What part of this task do they still enjoy or understand?
  • What used to be meaningful or familiar?
  • Can I simplify the steps or provide visual or tactile cues?
  • Is there a way to do this seated or with lighter materials?
  • How much help is just enough?

This is what occupational therapists call the “just right” amount of support — not doing it for them, but not leaving them to struggle either. You’re creating the sweet spot where they can feel successful with a little help.

💡 Example:

If someone used to bake every Sunday but now gets overwhelmed by too many steps or instructions, adapt it:

  • Pre-measure the ingredients and label them with big, simple numbers.
  • Let them do the stirring, pouring, or adding sprinkles.
  • Use a boxed mix instead of a recipe from scratch.
  • Play their favorite music while you work to make it fun and familiar.

Even if the end result is lumpy muffins and a messy counter, they helped. And they probably smiled. That’s the win.

So whether it’s gardening, painting, organizing, or folding towels — don’t scrap the activity. Just reshape it. Strip it down to what still brings joy and pride, and build from there.


And here’s another powerful truth: being helpful can be one of the best tools for behavior management. When someone with dementia is anxious, agitated, or stuck in a loop of worry, inviting them to help with something can redirect that energy into something productive and calming. Instead of saying “don’t do that” or “calm down,” try saying, “Could you help me with this?” or “I need your advice.” Giving someone a role and a task — even a simple one — can ease frustration and create a sense of control, dignity, and peace.

Making It Part of the Routine: Care Plans with Purpose

One of the best ways to make purposeful activity stick is to build it right into the daily routine and care plan. Just like meals, medications, and hygiene, meaningful tasks deserve a place on the schedule. Think of it as “purposeful time,” not “free time.” Whether it’s folding laundry after breakfast, checking the garden in the afternoon, or helping set the table before dinner, anchoring these familiar tasks into the rhythm of the day helps the person feel more secure and engaged. Work with your care team — or if you’re a care partner, with your fellow staff — to identify what this person used to love doing or feel good doing, and adapt it for today’s abilities. Person-centered care means who they are, shapes what they do, and when daily life reflects their story, it becomes more comfortable, connected, and empowering.

We All Need Purpose

Here’s the thing—purpose isn’t just a dementia care strategy. It’s a human need. Every one of us wants to feel useful, needed, and part of something. It’s what gets us out of bed in the morning and helps us sleep better at night. Purpose gives our days shape and meaning. When we feel like we matter—whether we’re nine or ninety, cognitively sharp or living with dementia — our mental health improves, our mood lifts, and our overall well-being thrives. That doesn’t change just because someone has memory loss. In fact, in a world that may feel increasingly confusing or disorienting, a sense of purpose becomes even more essential. It grounds us. It reminds us that we’re still us. And for many, having a job to do — even a small one — can be a powerful antidote to sadness, anxiety, or stress. It creates a sense of normalcy, belonging, and joy in the everyday.


In a World That Can Feel Confusing, Purpose Brings Peace

At Dementia Life STL, we believe productivity doesn’t have to mean doing more — it means finding meaning in what we can do. For someone with dementia, being part of caring for their home, their space, and their people brings comfort, confidence, and connection.

So the next time your loved one says, “Let me help,” let them.

Give them the duster. Hand them the laundry basket. Invite them to stir the soup.

Let them show you that even now, they still have so much to give.


💬 Have a story to share about a loved one and their favorite “daily job”? We’d love to hear it! Comment below or message us—your story could inspire another caregiver to try something new.

Female Doctor Talking with Senior Adult Woman About Hand Therapy.
Daily Life & CaregivingEmotional & Spiritual SupportPersonal Stories & TestimoniesResources & Tools

Learning To Dance: A Nurse’s Journey Into Dementia Care

THE NURSE WHO COULD TALK TO ANYONE 

I’ve always seen myself as someone who connects easily with others. Striking up conversations with strangers, finding common ground with people from all walks of life — it came naturally to me. I prided myself on being nonjudgmental and making others feel at ease, no matter their background or story.  

It’s one of the reasons I felt so drawn to nursing. That ability to build quick trust became one of my greatest strengths as a Registered Nurse. 

WHEN CONFIDENCE TURNS TO UNCERTAINTY 

But when I started working with patients with dementia, something shifted.  

For the first time in my career – maybe in my life – that ease didn’t come so naturally. The connection I had always relied on felt just out of reach. And that was a humbling experience. 

I expected my personality, my training, and my nursing background to be enough. Afterall, I had studied the symptoms. I understood the disease process. I had practiced communication strategies and memorized the medications and treatments used for common behaviors. I was prepared… or so I thought.  

But nothing quite prepared me for the real thing. 

I became rigid. Uncomfortable. Unsure of myself and my actions. I had been taught to speak to and treat my elders in a certain way, and suddenly, none of it seemed to apply. I was in a world of unknowns — and frankly, it baffled me. 

TRAINING ISN’T THE SAME AS EXPERIENCE 

The truth is, no amount of training can fully ready you for the emotional, unpredictable, often tender moments that come with caring for someone with dementia.  

And that’s okay. 

It’s okay if you feel uncomfortable at first. I did, too

I remember second-guessing my words, wondering if I was doing the right thing, feeling overwhelmed when a patient grew agitated or confused. I wanted to fix it. I wanted to connect. And sometimes —despite my best efforts — I felt like I was falling short. 

But what I’ve come to realize over time is this: Caring for someone with dementia is not about perfection. It’s about presence. 

THE MOMENT IT CLICKED 

I remember the exact moment it finally clicked — the moment I truly understood what it takes to work with someone living with dementia.  

I was caring for a patient in a dementia unit at a long-term care facility. She sat in her wheelchair, parked in the hallway, firmly refusing to return to her apartment. After trying every gentle nudge I could think of, I gave in and began changing her wound dressing right there in the hallway. 

As I worked, I heard footsteps approaching from around the corner. A Physical Therapist appeared, guiding another dementia patient beside him. He was trying to teach her how to use her walker safely, but she was growing more frustrated and agitated by the second. 

I paused, curious to see how he would respond. 

Then, something beautiful happened.  

He stopped. He turned to face her, looked into her eyes with calm assurance, and gently took the walker from her hands, setting it aside. 

Then, with a warm smile, he extended his hand and asked: 

“May I have this dance?” 

She giggled — an honest, childlike laugh — and placed her hand in his. And just like that, they began ballroom dancing down the hallway. Not walking. Not redirecting. Dancing. 

They floated down the corridor as staff, visitors, residents, and even physicians watched with wide smiles. Laughter filled the space as they moved together—completely immersed in the moment. 

And that’s when it hit me. 

WHAT I KNOW NOW 

There is no one-size-fits-all approach. What worked for one person on Monday may not work for another on Tuesday. And that’s okay.  

It’s okay to learn as you go. It’s okay to take a breath, to pause, to regroup. It’s okay to make mistakes — and it’s more than okay to forgive yourself for them. 

Because what matters most is that you show up. And that you keep showing up. That you offer kindness, patience, and grace — not just to the person you’re caring for, but to yourself as well. 

CONNECTION BEYOND WORDS 

Working with dementia patients has taught me that connection doesn’t always come from words. Sometimes it’s found in quiet companionship, a gentle touch, or a shared moment of laughter. Sometimes, simply being there — calm, steady, and compassionate — is enough. 

So if you’re new to this, if you’re struggling, if you’re wondering whether you’re doing it “right,” I want you to hear this clearly:  

You are not alone. 

It’s okay to ease into it. It’s okay if it doesn’t come naturally. And it’s absolutely okay to grow into the role over time. 

THE LONG AND WINDING ROAD 

Dementia care is a journey — one of empathy, adaptation, and continuous learning. And if your heart is in the right place, you’re already doing better than you think. 

-Brooke Glenn RN 

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Daily Life & CaregivingFamily SupportResources & Tools

Dignity in the Bathroom: Practical Tips for Restroom & Personal Care Challenges in Dementia

Let’s talk about one of the most common, the most difficult, — and the least talked about — challenges in dementia care: bathroom issues.

If you’re helping a loved one who’s forgetting how to use the toilet, having accidents, or resisting help with personal care, you’re not alone. These moments can feel overwhelming — but with the right tools and mindset, they can be managed with compassion, dignity, and even a little humor.

At Dementia Life STL, we’re here for the everyday, behind-the-scenes work that no one sees — but that matters more than words can say.


When the Role Reverses: Caring for a Parent in the Bathroom

Helping a parent with personal care is deeply emotional. You may feel:

  • Awkward
  • Embarrassed
  • Overwhelmed
  • Heartbroken
  • Guilty

You’re stepping into a role reversal most people are never prepared for. You’re doing something intimate and vulnerable — for someone who once did everything for you. That takes incredible strength.

These emotions are normal.

How to Handle the Discomfort

  • Name the feeling – “This is hard” is a valid truth.
  • Pause and breathe – Center yourself before entering the space.
  • Remind yourself of their “why” – The person can’t help the restroom challenges they are facing
  • Remind yourself of your ‘why’ – Love. Loyalty. Compassion.
  • Use humor when appropriate – It can diffuse tension and create connection.
  • Seek help and community – Find others who are also on a journey of caring for someone with dementia and lean on each other.

You are allowed to feel uncomfortable and do the hard thing anyway. That’s courage. That’s caregiving.


Why Bathroom Challenges Happen

Restroom needs often become more complex as dementia progresses:

  • Memory loss – Forgetting where the bathroom is or when to go
  • Mobility issues – Trouble getting there in time
  • Communication – Inability to express the need
  • Visual/spatial changes – Bathroom doesn’t “look right” to them
  • Incontinence – Can increase over time

Sometimes, people simply get distracted or can’t process the signals their body is sending them.


8 Caregiver-Approved Tips That Work

While restroom challenges may never go away, there are some things you as a caregiver can do to make it easier.

1. Create a Routine

We can’t stress enough how important a daily routine is in dementia care! Someone with dementia is typically unable to guide themselves through a path that includes the daily essentials for wellness – nutrition, hydration, movement, and restroom needs. It’s SO important to encourage bathroom visits every 2–3 hours, even if they don’t ask. Try:

  • First thing in the morning
  • Before and after meals
  • Before bed
  • Before leaving the house

When eating, hydration and movement happen close to the same times every day, restroom needs become more predictable too – which will make it easier on everyone involved!


2. Make the Bathroom Easy to Find

  • Leave doors open and lights on
  • Use clear signage with images
  • Consider motion-sensor lights at night

3. Improve Visibility & Comfort

  • Use a brightly colored toilet seat to increase visibility
  • Add non-slip rugs, grab bars, and a raised seat
  • Remove clutter to prevent confusion and distraction

4. Simplify Clothing

  • Elastic waistbands
  • Velcro closures
  • Avoid belts, zippers, and buttons

Quick, easy removal makes success more likely.


5. Use Incontinence Products with Confidence

Adult briefs, pads, or pull-ons can make life much easier. Choose what fits their level of mobility and dignity.

When to Change Briefs:

  • After a bowel movement or major leak
  • Every 2–4 hours during the day
  • At bedtime and first thing in the morning
  • Anytime they feel wet or uncomfortable

How to Change Briefs:

  1. Gather supplies – Gloves, wipes, barrier cream, clean brief, disposal bag
  2. Offer privacy – Close doors, speak reassuringly
  3. Clean thoroughly – Wipe front to back, gently
  4. Check skin – watch for redness, rash, open sores, blisters, skin breakdown in folds or pressure points
  5. Apply barrier cream – Helps protect skin
  6. Dispose discreetly – Use a scented or sealed bag
  7. Wash your hands and breathe – You just did something loving

6. Approach and Respond with Calm and Kindness

Accidents are inevitable, and in these deeply vulnerable moments, it’s so important to prioritize dignity. 

Say:

“Let’s get you cleaned up. You’re okay.”
“It’s no big deal—we’ll take care of it.

Avoid:

  • Shaming
  • Rushing
  • Scolding
  • Showing frustration or disgust

Be mindful of their history. Some individuals living with dementia may have experienced trauma earlier in life — such as abuse, neglect, or assault — that they cannot express or recall clearly. Being touched or exposed during personal care can unknowingly trigger fear or resistance.

That’s why gentleness matters:

  • Announce each step before you do it
  • Ask permission, even if they can’t respond with words
  • Make eye contact and offer reassurance
  • Use slow, calm movements to maintain trust

Your respectful, patient approach helps restore a sense of safety and dignity — especially for someone who may no longer be able to ask for it.


7. Plan Ahead When Out

  • Pack a “go bag” with extras – briefs, wipes, and dry clothing
  • Know restroom locations
  • Use companion cards to discreetly explain behaviors if needed

8. Talk to the Doctor

Significant bathroom changes can signal:

  • UTI
  • Constipation
  • Medication side effects
  • Dehydration
  • Other medical conditions

Keep a care log of changes and concerns, and bring them to the care team.


It’s Not About Control—It’s About Compassion

These challenges aren’t a sign of failure on the part of the person with dementia OR on the part of the caregiver. They’re part of the dementia journey—and you’re doing something extraordinary by showing up with care and consistency.

Every trip to the bathroom, every changed brief, every awkward moment—you are preserving their dignity and meeting a need with love.

That’s what caregiving looks like.


Final Encouragement

This is sacred, quiet work. It’s not always talked about, but it’s deeply human.

If you’ve ever wiped tears while wiping someone clean — you’re not alone.
If you’ve ever felt like you couldn’t do it, then did it anyway — you’re not alone.
If you love someone through the hardest parts — you’re a hero in plain clothes.

At Dementia Life STL, we’re with you. And we’re so proud of you.


👋 Share Your Tips!

Have your own bathroom-care hacks or wisdom to share? Send them to contact@dementialife.care — you never know who you’ll help.

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Daily Life & Caregiving

Person Centered Care: Honoring the Individual Behind the Diagnosis

At Dementia Life STL, we believe that even as dementia changes a person’s memory and abilities, it doesn’t change who they are at their core. That’s why person-centered care is at the heart of everything we do — and why we encourage families, care partners, and professionals to embrace it every day.

What Is Person-Centered Care?

Person-centered care means seeing the person first, not the dementia. It’s about honoring their unique history, preferences, values, and personality — not just managing symptoms or tasks. It shifts the focus from what needs to be done to what matters to this person right now.

In short: It’s not just about giving care. It’s about giving care with love, dignity, and respect for the whole person.

Why It Matters

For someone living with dementia, the world can become confusing, frustrating, and sometimes frightening. When we center care around who they are, we help them feel safe, seen, and valued—even if they can’t express it in words.

Person-centered care can:

  • Reduce anxiety and agitation
  • Improve communication and connection
  • Enhance quality of life
  • Restore dignity in moments that might otherwise feel vulnerable or disorienting

And for caregivers? It brings more meaning and less stress to daily routines, turning tasks into moments of connection.


How to Incorporate Person-Centered Care into Daily Life

You don’t need to overhaul everything. Person-centered care is made up of small, intentional choices. Here’s how to get started:

1. Build routines around their rhythms and preferences

Do they like coffee before breakfast? A walk after lunch? What was their daily routine prior to dementia? Try to stick to familiar patterns that bring comfort and reduce confusion.

2. Use their name often and talk to them like an adult

Even if your loved one struggles to respond, the tone and respect in your voice make a difference. Speak to them, not around them.

3. Incorporate what they love

Play their favorite music. Cook a childhood recipe. Watch an old movie they adored. These familiar joys can spark memories and calm the mind.

4. Surround them with meaningful objects

Photos, keepsakes, and even favorite scents (like lavender or fresh-baked cookies) can bring peace and connection to the present moment.

5. Adapt activities to what they can do

Person-centered care focuses on ability, not loss. If they can no longer write, can they help choose a card? Fold towels? Sort buttons by color? Look for ways to involve them with dignity.


Making It a Team Approach

You might be the heart of your loved one’s care—but you’re not the only one involved. Whether there’s a home aide, adult day center, family helpers, or a long term care community, here’s how to make sure person-centered care is shared across the team:

Create a “Who They Are” Snapshot

Write down a few key things:

  • Preferred name
  • Favorite foods, music, and pastimes
  • Routines that are familiar and meaningful
  • Triggers to avoid (like loud noises or crowded rooms)
  • Calming strategies, phrases, and activities that work

Share this with anyone who interacts with your loved one. Post it on the fridge, keep a copy in their room, or include it in their care plan.

Hold regular check-ins

If others help with care, meet every so often (even briefly) to talk about what’s working, what isn’t, and how to keep the person at the center of the plan.

Be their voice when needed

If your loved one can’t speak up for themselves, you can. Advocate for care that honors who they are, not just what’s on the task list.


In the End…

Person-centered care isn’t a technique — it’s a mindset. It’s love in action. It’s the promise that you still matter, even when memories fade.

At Dementia Life STL, we see you. We’re walking with you. And we believe that every person living with dementia deserves to be known, respected, and cherished.

Let’s keep putting the person first — together.

💙
— The Dementia Life STL Team